Quote:
Originally Posted by ShellyCrash
Epitome, I'm so sorry to hear about your health situation. My best friend has Crohns. Have your tried probiotics at all? Do they help?
I don't know how much you want to get into on the boards, but I'm very familliar with GI probs. If you ever want to feel free to hit me up on ICQ if you want to talk about it. I might have some good advice that can help, but also if you just want someone to listen, anytime.
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Sorry, Shelly, I am just getting to reading from the beginning again to make sure I have not missed anyone.
I've tried just about everything. Probiotics is new to me but if they go by any other name then I have probably tried them. My main problems are infections. Remicade worked wonders for a few years but it eventually stopped.
I started getting more frequent bowel obstructions which is why we went the colostomy route. I should have gotten this thing years ago but was always afraid of it. Oh was I ever misinformed!
I still get infections but they are not as severe. I've also had some other weird things happen to me, but overall I am the healthiest I have been for while.
One thing scares the shit of me. I have a lytic lesion on my spine that grows between CT scans. If they don't grow, you're fine...if they do grow, it may be nothing or it may be cancer. Naturally, I cannot afford to see a specialist or get the tests done. I'm always tired but my appetite is healthy and its been well over a year since it was discovered. I'm thinking its not cancer. I'll get worried if I start shedding weight.
As for all of the pain I have, the pain meds keep them in check. Everything else is tolerable so long as I do not have much pain.
I've heard that with the new bill that passed I may be able to purchase health insurance starting in 2014. I'll make sure I stick around to find out.
