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Old 04-04-2011, 09:16 AM  
dallasnovelty
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Join Date: Aug 2009
Location: Dallas, TX
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I have a very rare muscular skeletal disease called Fibrodysplasia Ossificans Progressiva or FOP for short, visit IFOPA.org for more info. It translates into my muscles turn to bone and it progresses throughout my body.
My body is pretty much building a second skeleton on top of existing one. Any trauma or injury can cause a flareup to occur and a bone to form. It is a genetic disorder that can be passed on but in my case it was just a weird combination of circumstances because no one in our family has had it so it came from a gene mutation caused during gestation. There are only 700 cases or so diagnosed worldwide and only 4 in Texas and 280 in US. The disease causes me to be permanently bent at about 45 degree angle so I am perfectly BOOB high ;) I get tons of people staring at me and trying to figure out what is wrong with me, we had a guy almost walk off the second story at a mall because he had turned around to look at me. Because of this disease I stand about 12-16 hours a day working on the computer and it can get very painful so I constantly shift weight and most times I am more comfortable standing than sitting since I can change positions.

Sorry to thread jack from OP If anyone is interested I'll start a new thread for it.
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