Dropping by Saying Hi
 

Hi all :321GFY

Haven't been by for a long time, just want to say I still love you all :)

Been battling with Chronic Myeloid Leukemia since December 2017, I will live but the side effects from the treatment are bad at times almost not worth it. Luckily I moved back to Denmark a while before so I get the best treatment and care :)

Good to see many familiar names still around and I wish you all the best, no matter our differences in the past.

Michael from epass?

Yep thats was me.

No michael from Zombaio :1orglaugh

Sorry to hear that mate, wishing you all the best

Hi man, welcome back :)

Stay strong, Michael.

after redpass i thought you would never come back :Oh crap

im sorry to hear about your CML, are you getting Gleevec as treatment ?

man... that company.. :disgust

Hi Michael. I'm sorry to hear about your illness but glad to hear you're improving. I've been going through some health issues myself the last 6+ months. Stay strong and get better!

Hey man, food to see you. Be well!

Hey Michael, hope you get well, I mean, as well as you possibly can. Good to see you're still checking in on us here :)

Welcome back, stay strong.

Good to see you're doing well despite your health.

Michael is in motion.

I hope you continue to get better and feel better soon.

Good to hear from you!

Great having you here, and hope you're better now!

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Get well soon!

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I am on imatinib but the side effects has gotten so much worse the last 2 months that at my next appointment with the doctor will insist on changeing to something else.
Everyone starts out on imatinib here because its by far the cheapest and we get it free from the hospital, then gets moved to Glivec or tasigna or something else depending on side effects.

For me the fatigue have been the worst I can't walk up to the 2nd floor, always worked many hours but now, I can work 2-3 hours every second day but due to that I have been approved for what we call Flexjob here, which means I work what I can maybe 10 hours a week but I still get paid a full salary and health care here is free so I am very lucky.

What kind did/do you have?
I never knew that there were different types until recently

I had a blood test made in June of 17 and everything were normally, in December I had another made and when I called for the results my GP said it could not be right and I had to do another one. I checked the results online myself and my white blood cell count were 53*10^9 so when I called the next day for the results and my GP asked me to come into the office I was not surprised he sent me straight to the hospital and Dec 22nd I had the tests including bone marrow which is the most painful experience in my life and Dec 27th I began treatment so that were a merry fucking christmas.
I reacted very well to the treatment and my hemathologist almost seemed surprised when he saw my early test results but the side effects have been getting worse.
Knowing this may be life long or 7-10 years before I can start to do stop trials are at times hard but things could have been a lot worse, I can one of the good kinds of leukemia.

Great to have you back..Keep on fighting

I had Acute Lymphoblastic Leukemia (ALL) ph+... so I needed to get a bone marrow/blood cell transplant.. That was in 2000/01, previous to gleevec, fortunately I survived but I was never the same as far as health goes...always weak, always tired and unable to do much physical activity...

keep up the fight, Michael :)

We love you, Shemp (although you might hate us) . . .

I don't know what hate is …

Keep it up and best of luck! hope you win the fight

Nice to see you around mate, wish you good health long life

great to hear you´re having the best treatment, wishing you well our friend & hi from both Gary and me ..


stay strong and good luck x

Too much positivity isn't healthy as well.

There is where I am, Just going shopping if I carry more than a couple of kilos or have to walk up a hill I get exchausted quickly.
Its the always tired, always weak thing about a month ago was the first time I wondered if the treatment were worth it? I don't have wife or kids so maybe a couple of years of fun?

Get well man.